So somehow I missed another day. My platelets are still fluctuating wildly, from -6 to 30 to 4 to 16 to 12. I refuse to worry about it because it is out of my hands. god and Dr F have it under control. I just lie here and recuperate! My exciting day consists of sleeping, waking, FBIng, blogging, reading, and visiting with John. I do have my daily vodka bath and room scrub down with fresh linens every day and four meals, one of which I've begun to skip. Yesterday, I only ate oatmeal, vegetable soup, and fish soup and some nuts. Sure wish I could maintain that small caloric intake when I return home! Poor John had to help me shower this morning. I am ashamed to admit that this a not a daily occurrence-far too much work leading to complete exhaustion. The rest of my bald head is truly losing hair now and it clings to gauze with which i wash my head. It is exhilirating to be clean and to be tucked into clean linens. Such small pleasures!
I am still in the stage of neutropenia, which I've explained before. I have zero energy and I've yet to see my blood readings for the day, so don't know if I have low platelets yet again. dr F is always on top of things and responds appropriately. He even gave me his cell number if I need a nurse to call him! So now I wait for engraftment to occur. When that begins, I'll know I am on my way! I have lost 18-19 pounds! I think,it's following me around on my booty! Stephanie, it will take some serious toning to get this old body into anything resembling normalcy! That's OK. If I am able, I will do it!
OK, this happens every time I post a comment. I write it and then hit publish and it goes away. Will try again, hope you get your energy back soon! I can almost relate to the no energy feeling. We have had our three grandsons for a little over a week.
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